Canadian Institutes of Health Research
A CIHR Working Group made up of patients, researchers and ethicists has co-developed draft Ethics Guidance for Developing Research Partnerships with Patients, and is inviting your feedback. The Guidance builds on the Patient Engagement Framework of the Strategy for Patient-Oriented Research, and is intended as an educational resource primarily for patients and health researchers, as well as research institutions and funders of research. The Guidance focuses on ethical concerns that need to be addressed to maintain trust in research partnerships across the research lifecycle.
Feedback on the Draft CIHR Ethics Guidance for Developing Research Partnerships with Patients can be submitted from November 26, 2018 until January 28, 2019.