Deliberation Project Websites
- Biobanks and biomedical data sharing
- Sequencing the salmon genome
- Explosives, the environment, and microbial genetics
Publications from Deliberative Democracy Events and Associated Research
Burgess, M. M., Longstaff, H. & O’Doherty, K. C. (2016). Assessing deliberative design of public input on British Columbia biobanks. In S. Dodds & R. Ankeny (Eds.). Big Picture Bioethics: Developing Democratic Policy in Contested Domains. Springer International Publishing. doi: 10.1007/978-3-319-32240-7
Chalmers, D., Burgess, M. M., Edwards, K., Kaye, J., Meslin, M. M. & Nicol, D. (2015). Marking shifts in human research ethics in the development of biobanking. Public Health Ethics, 8(1), 63-71. doi: 10.1093/phe/phu023
Burgess, M. M. & Longstaff, H. (2014). Representing the cultural significance of salmon in a west coast public deliberation. In K. Culver & K. O’Doherty (eds.). Fishing and Farming Iconic Species: Cod and Salmon and Social Issues in Genomics Science. Concord, Ontario: Captus Press.
Cohen, E. & O’Doherty, K. C. (2014). Perceptions of salmon genomics among the Chinese-Canadian and Indo-Canadian community in BC. In K. Culver & K. O’Doherty (eds.). Fishing and Farming Iconic Species: Cod and Salmon and Social Issues in Genomics Science. Concord, Ontario: Captus Press.
O’Doherty, K. C., Longstaff, H. & Burgess, M. M. (2014). Using deliberative democracy to inform policy on applications arising from salmon denomics research. In K. Culver & K. O’Doherty (eds.). Fishing and Farming Iconic Species: Cod and Salmon and Social Issues in Genomics Science. Concord, Ontario: Captus Press.
Burgess, M. M. (2014). From ’trust us’ to participatory governance: Deliberative publics and science policy. Public Understanding of Science, 23(1): 48-52. doi: 10.1177/0963662512472160.
Moore, A. & O’Doherty, K. (2014). Deliberative voting: Clarifying consent in a consensus process. The Journal of Political Philosophy, 22(3), 302–319. doi: 10.1111/jopp.12028
Chalmers, D., McWhirter, R. E., Nicol, D., Whiton, T., Otlowski, M., Burgess, M., Foote, S. J., Critchley, C. & Dickinson, J. L. (2014). New avenues within community engagement: Addressing the ingenuity gap in our approach to health research and future provision of health care. Journal of Responsible Innovation, 1(3), 321-328. doi: 10.1080/23299460.2014.963002
O'Doherty, K. C. (2013) Synthesising the outputs of deliberation: Extracting meaningful results from a public forum. Journal of Public Deliberation, 9(1). Retrieved from https://www.publicdeliberation.net/jpd/vol9/iss1/art8/
O’Doherty, K. C. & Burgess, M. M. (2013). Public deliberation to develop ethical norms and inform policy for biobanks: Lessons learnt and challenges remaining. Research Ethics, 9(2), 55-77. doi: 10.1177/1747016113488858.
Nep, S. & O’Doherty, K. C. (2013). Understanding public calls for labeling of GM foods: Analysis of a public deliberation on GM salmon. Society & Natural Resources, 26(5), 506-521. doi: 10.1080/08941920.2012.716904.
O’Doherty, K. C., MacKenzie, M. K. & Badulescu, D., & Burgess, M. M. (2013). Explosives, genomics, and the environment: Conducting public deliberation on topics of complex science and social controversy. Sage Open, 3. doi: 10.1177/2158244013478951.
Burgess, M. M. (2012). Deriving policy and governance from deliberative events and minipublics. In M. Howlett & D. Laycock (Eds.), Regulating Next Generation Agri-Food Biotechnologies: Lessons from European, North American and Asian Experiences. (pp. 220-236). London, UK: Routledge.
O'Doherty, K. C., Gauvin, F.-P., Grogan, C., & Friedman, W. (2012). Implementing a Public Deliberative Forum. Hastings Center Report, 42(2), 20-23. doi: 10.002/hast.28
O’Doherty, K. (2012). Theorising deliberative discourse. In K. O’Doherty & E. Einsiedel (Eds.), Public Engagement and Emerging Technologies. (pp. 133-147). Vancouver, BC: UBC Press.
O’Doherty, K. C., Hawkins, A. K, & Burgess, M. M. (2012). Involving citizens in the ethics of biobank research: Informing institutional policy through structured public deliberation. Social Science and Medicine, 75, 1604-1611. doi: 10.1016/j.socscimed.2012.06.026
O'Doherty, K. C., Ibrahim, T., Hawkins, A. K., Burgess, M. M. & Watson, P. (2012). Managing the introduction of biobanks to potential participants: Lessons from a deliberative public forum. Biopreservation and Biobanking, 10(1), 12-21. doi: 10.1089/bio.2011.0029
Secko, D. M. (2012). Swimming with salmon: The use of journalism to public engagement initiative on emerging biotechnologies. In K. O'Doherty & E. Einsiedel (Eds.), Public Engagement and Emerging Technologies. (pp. 211-228). Vancouver, BC: UBC Press.
MacKenzie, M. K. & O'Doherty, K. C. (2011). Deliberating future issues: Minipublics and salmon genomics. Journal of Public Deliberation, 7(1). Retrieved from https://www.publicdeliberation.net/jpd/vol7/iss1/art5
O’Doherty, K. C., Burgess, M. M., Edwards, K., Gallagher, R., Hawkins, A., Kaye, J., McCaffrey, V., & Winickoff, D. (2011). From consent to institutions: Designing adaptive governance for genomic biobanks. Social Science and Medicine, 73, 367-374. doi: 10.1016/j.socscimed.2011.05.046.
Walmsley, H. L. (2011). Stock options, tax credits or employment contracts please! The value of deliberative public disagreement about human tissue donation. Social Science & Medicine, 71(1), 209-216. doi: 10.1016/j.socscimed.2011.05.005
Hawkins, A. K. & O'Doherty, K. C. (2010). Biobank governance: A lesson in trust. New Genetics & Society, 29(3), 311-325. doi: 10.1080/14636778.2010.507487
Longstaff, H & Burgess, M. M. (2010). Recruiting for representation in public deliberation on the ethics of biobanks. Public Understanding of Science, 19(2), 212-24. doi: 10.1177/0963662508097626
O'Doherty, K.C., Burgess, M. M. & Secko, D. M. (2010). Sequencing the salmon genome: A deliberative public engagement. Genomics, Society and Policy, 6(1), 16-33. doi: 10.1186/1746-5354-6-1-15
O’Doherty, K. C. & Hawkins, A. K. (2010). Structuring public engagement for effective input in policy development on human tissue biobanking. Public Health Genomics, 13(4), 197-206. doi: 10.1159/000279621
O'Doherty, K. C. & Davidson, H. J. (2010). Subject positioning and deliberative democracy: Understanding social processes underlying deliberation. Journal for the Theory of Social Behaviour, 40(2), 224-245. doi: 10.1111/j.1468-5914.2009.00429.x
MacLean, S & Burgess, M. M. (2010). In the public interest: Assessing expert and stakeholder influence in public deliberation about biobanks. Public Understanding of Science, 19(4), 486-496. doi: 10.1177/0963662509335410
Longstaff, H & Secko, D. M. (2010). Media influence on biobank deliberations. Journal of Health & Mass Communication, 2, 73-96. Retrieved from http://www.csjp.ca/wordpress/wp-content/uploads/2011/11/Longstaff_Secko_JHMC_2010.pdf
Walmsley, H. L. (2010). Biobanking, public consultation, and the discursive logics of deliberation: Five lessons from British Columbia. Public Understanding of Science, 19(4), 452-468. doi: 10.1177/0963662509335523
Walmsley, H. L. (2010). Witnessing genomics: The design, facilitation and evaluation of inclusive deliberative public consultation about biobanking in British Columbia (Canada) (Doctoral Dissertation, Lancaster University). Retrieved from http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.547973
Walmsley, H. L., Burgess, M. M., Brinkman, J., Hegele, R., Wilson-McManus, J., & McManus, B. (2010). Ethics of biomarkers: Where are the borders of investigative research, informed consent and patient protection. In M. Bleravins, R. Rahbari, M. Jurima-Romet & C. Carini (Eds.) Biomarkers in Drug Development: A Handbook of Practice, Application and Strategy. (pp. 625-642) New York, NY: Wiley.
Avard, D., Bucci, L. M., Burgess, M. M., Kaye, J., Heeney, C., & Cambon-Thompson, A. (2009). Public health genomics and public participation: Points to consider. Journal of Public Deliberation, 5(1). Retrieved from https://www.publicdeliberation.net/jpd/vol5/iss1/art7
Secko, D. M., Preto, N., Niemeyer, S. & Burgess, M. M. (2009). Informed consent in biobank research: Fresh evidence for the debate. Social Science & Medicine, 68(4), 781-789. doi: 10.1016/j.socscimed.2008.11.020
O'Doherty, K. C. & Burgess, M. M. (2009). Engaging the public on biobanks: Outcomes of the BC Biobank Deliberation. Public Health Genomics, 12(4), 203-215. doi: 10.1159/000167801
Walmsley, H. L. (2009). Mad scientists bend the frame of biobank governance in British Columbia. Journal of Public Deliberation, 5(1). Retrieved from https://www.publicdeliberation.net/jpd/vol5/iss1/art6
Watson, P. H., Wilson-McManus, J. E., Barnes, R. O., Giesz, S. C., Png, A., Hegele, R. G., Brinkman, J. N., Mckenzie, I. R., Huntsman, D. G., Junker, A., Gilks, B., Skarsgard, E., Burgess, M. M., Aparicio, S., & McManus, B. (2009). Evolutionary concepts in biobanking - The BC BioLibrary. Journal of Translational Medicine, 7, 95. doi: 10.1186/1479-5876-7-95
Wilcox, E. S. (2009). Does "misinformation" matter? Exploring the roles of technical and conceptual inaccuracies in a deliberative public engagement on biobanks (Master’s thesis, University of British Columbia, Vancouver, Canada).
Tansey, J. & Burgess, M. M. (2008). The meaning of genomics: A focus group study of "interested" and lay classifications of salmon genomics. Public Understanding of Science, 17(4), 473-484. doi: 10.1177/0963662507076603
Burgess, M. M., O'Doherty, K. C. & Secko, D. C. (2008). Biobanking in BC: Enhancing discussions of the future of personalized medicine through deliberative public engagement. Personalized Medicine, 5(3), 285 - 296. doi: 10.2217/17410522.214.171.1245
Secko, D. M., Burgess, M. M., & O'Doherty, K. C., (2008). Perspectives on engaging the public in the ethics of emerging biotechnologies: From salmon to biobanks to neuroethics. Accountability in Research,15(4), 283-302. doi: 10.1080/08989620802388762
Wilcox, E. (2008). A Lego model to help inform participants at the British Columbia biobank deliberation. Health Law Review, 16(4), 9- 11.
Publications by Collaborators on Deliberative Events and In Theoretical Literature
Molster, C., Potts, A., McNamara, B., Youngs, L., Maxwell, S., Dawkins, H., & O'Leary, P. (2013). Informing public health policy through deliberative public engagement: Perceived impact on participants and citizen-government relations. Genetic Testing & Molecular Biomarkers, 17(9). doi: 10.1089/gtmb.2013.0044
MacKenzie, M. K., & Warren, M. E. (2012). Two trust-based uses of minipublics in democratic systems. In J. Parkinson & J. Mansbridge (Eds.), Deliberative Systems: Deliberative Democracy at the Large Scale. (pp. 95-124). Cambridge: Cambridge University Press. doi: 10.1017/CBO9781139178914.006
Molster, C., Maxwell, S., Youngs L., Potts, A., Kyne, G., Hope, F., Dawkins, H., & O’Leary, P. (2012). An Australian approach to the policy translation of deliberated citizen perspectives on biobanking. Public Health Genomics, 15(2), 82-91. doi: 10.1159/000334104
Molster, C., Maxwell, S., Youngs, L., Kyne, G., Hope, F., Dawkins, H., & O’Leary, P. (2011). Blueprint for a deliberative public forum on biobanking policy: Were theoretical principles achievable in practice? Health Expectations, 16(2), 11-224. doi: 10.1111/j.1369-7625.2011.00701.x
Submitted or In-Press
Tansey, J & MM Burgess (in press). Complexity of public interest in ethical analysis of genomics. In D. Castle & K. Culver (Eds.) Genomics and Public Policy: Issues and Perspectives for Canada and the World. Vancouver, BC: UBC Press.
Walmsley, H. (under review). From dinosaur clones to infertile super-humans: The temporality of deliberative communication in a promissory bio-democracy. Social Studies of Science.