Publications

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Health Data, Biobanks, Governance

Teng, J., Bentley, C., Burgess, M., M., O'Doherty, K., C., McGrail, K. M. (2019). Sharing linked data sets for research: Results from a deliberative public engagement event in British Columbia, Canada. International Journal of Population Data Science, 4(1), 13. doi: 10.23889/ijpds.v4i1.1103

O’Doherty, K. C., Christofides, E., Yen, J., Bentzen, H. B., Burke, W., Hallowell, N., Koenig, B. A., & Willison, D. J. (2016). If you build it, they will come: Unintended future uses of organised health data collections. BMC Medical Ethics, 17, 54. doi: 10.1186/s12910-016-0137-x 

Stroud, K. & O’Doherty, K. C. (2015). Ethically sustainable governance in the biobanking of eggs and embryos for research. Monash Bioethics Review, 33(4), 277-294. doi: 10.1007/s40592-015-0047-6

O’Doherty, K. C., Burgess, M. M., Edwards, K., Gallagher, R., Hawkins, A., Kaye, J., McCaffrey, V., & Winickoff, D. (2011). From consent to institutions: Designing adaptive governance for genomic biobanks. Social Science and Medicine73, 367-374. doi: 10.1016/j.socscimed.2011.05.046.

Hawkins, A. K. & O'Doherty, K. C. (2010). Biobank governance: A lesson in trust. New Genetics & Society29(3), 311-325. doi: 10.1080/14636778.2010.507487


Public Deliberation on Science and Technology

O’Doherty, K. C. (2017). Deliberative public opinion: Development of a social construct. History of the Human Sciences, 30(4), 124-145. doi: 10.1177/0952695117722718

Burgess, M. M., Longstaff, H., & O’Doherty, K. C. (2016). Assessing deliberative design of public input on British Columbia biobanks. In S. Dodds & R. Ankeny (Eds.) Big Picture Bioethics: Developing Democratic Policy in Contested Domains (pp. 263-278). Cham, Switzerland: Springer. doi: 10.1007/978-3-319-32240-7_13

O’Doherty, K. C., Longstaff, H., & Burgess, M. (2014). Using deliberative democracy to inform policy on applications arising from salmon genomics research. In K. Culver & K. O’Doherty (Eds.) Fishing and Farming Iconic Species: Cod and Salmon and Social Issues in Genomic Science. Captus University Publications.

Moore, A. & O’Doherty, K. C. (2014). Deliberative voting: Clarifying consent in a consensus process. The Journal of Political Philosophy, 22(3), 302–319. doi: 10.1111/jopp.12028

O'Doherty, K. C. (2013). Synthesising the outputs of deliberation: Extracting meaningful results from a public forum. Journal of Public Deliberation, 9(1). Retrieved from http://www.publicdeliberation.net/jpd/vol9/iss1/art8

O’Doherty, K. C. & Burgess, M. M. (2013). Public deliberation to develop ethical norms and inform policy for biobanks: Lessons learnt and challenges remaining. Research Ethics, 9(2), 55-77. doi: 10.1177/1747016113488858

O’Doherty, K. C., MacKenzie, M. K., Badulescu, D., & Burgess, M. M. (2013). Explosives, genomics, and the environment: Conducting public deliberation on topics of complex science and social controversy. Sage Open3(1), 1-17. doi: 10.1177/2158244013478951

Nep, S. & O’Doherty, K. C. (2013). Understanding public calls for labeling of GM foods: Analysis of a public deliberation on GM salmon. Society & Natural Resources, 26(5), 506-521. doi: 10.1080/08941920.2012.716904

O’Doherty, K. C. (2012). Theorising deliberative discourse. In K. O’Doherty & E. Einsiedel (Eds.), Public Engagement and Emerging Technologies (pp. 133-147). Vancouver, BC: UBC Press.

O'Doherty, K. C., Gauvin, F.-P., Grogan, C., & Friedman, W. (2012). Implementing a Public Deliberative Forum. Hastings Center Report, 42(2), 20-23. doi: 10.002/hast.28

O’Doherty, K. C., Hawkins, A., & Burgess, M. (2012). Involving citizens in the ethics of biobank research: Informing institutional policy through structured public deliberation. Social Science & Medicine, 75, 1604-1611. doi: 10.1016/j.socscimed.2012.06.026

O'Doherty, K. C., Ibrahim, T., Hawkins, A. K., Burgess, M. M. & Watson, P. (2012). Managing the introduction of biobanks to potential participants: Lessons from a deliberative public forum. Biopreservation and Biobanking10(1), 12-21. doi: 10.1089/bio.2011.0029

MacKenzie, M. K. & O'Doherty, K. C. (2011). Deliberating future issues: Minipublics and salmon genomics. Journal of Public Deliberation7(1). Retrieved from https://www.publicdeliberation.net/jpd/vol7/iss1/art5 

O'Doherty, K.C., Burgess, M. M. & Secko, D. M. (2010). Sequencing the salmon genome: A deliberative public engagement. Genomics, Society and Policy, 6(1), 16-33. doi: 10.1186/1746-5354-6-1-15

O'Doherty, K. C. & Davidson, H. J. (2010). Subject positioning and deliberative democracy: Understanding social processes underlying deliberation. Journal for the Theory of Social Behaviour40(2), 224-245. doi: 10.1111/j.1468-5914.2009.00429.x

O’Doherty, K. C. & Hawkins, A. K. (2010). Structuring public engagement for effective input in policy development on human tissue biobanking. Public Health Genomics13(4), 197-206. doi: 10.1159/000279621

O'Doherty, K. C. & Burgess, M. M. (2009). Engaging the public on biobanks: Outcomes of the BC Biobank Deliberation. Public Health Genomics12(4), 203-215. doi: 10.1159/000167801

Burgess, M., O’Doherty, K. C., & Secko, D. (2008). Biobanking in British Columbia: Discussions of the future of personalized medicine through deliberative public engagement. Personalized Medicine, 5(3), 285-296. doi: 10.2217/17410541.5.3.285

Secko, D. M., Burgess, M. M., & O'Doherty, K. C., (2008).  Perspectives on engaging the public in the ethics of emerging biotechnologies: From salmon to biobanks to neuroethics. Accountability in Research,15(4), 283-302. doi: 10.1080/08989620802388762


Social and Ethical Aspects of Microbiome Science

Jenkins, A., Cunningham, S., & O’Doherty, K. C. (in press). Engaging publics on asthma and bacteria: Understanding potential negative social implications of human microbiome research. In K. O’Doherty, K. Osbeck, E. Schraube, & J. Yen (Eds.), Psychological Studies of Science and Technology. Palgrave-Macmillan. doi: 10.1007/978-3-030-25308-0

Haw, J., & O’Doherty K. C. (2018). Clinicians’ views and expectations of human microbiome science on asthma and its translations. New Genetics and Society, 37(1), 67-87. doi: 10.1080/14636778.2018.1430561

Chuong, K. H., Mack, D. R., Stinzi, A., O’Doherty, K. C. (2018). Human microbiome and learning healthcare systems: Integrating research and precision medicine for inflammatory bowel disease. OMICS A Journal of Integrative Biology, 22(2), 119-126. doi: 10.1089/omi.2016.0185

Chuong, K. H., Hwang, D. M., Tullis, D. E., Waters, V. J., Yau, Y. W., Guttman, D. S., & O’Doherty, K. C. (2017). Navigating social and ethical challenges of biobanking for human microbiome research. BMC Medical Ethics, 18(1). doi: 10.1186/s12910-016-0160-y

O’Doherty, K. C., Virani, A., & Wilcox, E. (2016). The human microbiome and public health: Social and ethical considerations. American Journal of Public Health, 106(3), 414-420. doi: 10.2105/AJPH.2015.302989

Chuong, K. H., O’Doherty, K. C., Secko, D. M. (2015). Media discourse on the social acceptability of fecal transplants. Qualitative Health Research, 25(10), 1359-1371. doi: 10.1177/1049732314568199

Achenbaum, L., O'Doherty, K. C., & McGuire, A. (2015). Ethical, legal, and social dimensions of human microbiome research. In Nelson K. (Ed.) Encyclopedia of Metagenomics. New York, NY: Springer. doi: 10.1007/978-1-4899-7475-4_92

O’Doherty, K. C., Neufeld, J. D., Brinkman, F. S. L., Gardner, H., Guttman, D. S., & Beiko, R. G. (2014). Opinion: Conservation and stewardship of the human microbiome. Proceedings of the National Academy of Sciences of the United States of America, 111(40), 14312-14313. doi: 10.1073/pnas.1413200111

O'Doherty, K. C. (2012, 1 March). Who are we really? Manipulating the human microbiome has ethical implications. The Scientist. Retrieved from https://www.the-scientist.com/?articles.view/articleNo/31755/title/Who-Are-We-Really

Hawkins, A. K., & O'Doherty, K. C. (2011). "Who owns your poop?": insights regarding the intersection of human microbiome research and the ELSI aspects of biobanking and related studies. BMC Medical Genomics, 4, 72. doi: 10.1186/1755-8794-4-72


Ethical, Legal, Social Implications (ELSI) of Genetics & Genomics

Christofides, E., & O’Doherty, K. C. (2016). Company disclosure and consumer perceptions of the privacy risks of direct-to-consumer genetic testing. New Genetics and Society, 35(2), 101-123. doi: 10.1080/14636778.2016.1162092

Longo, C., Rahimzadeh, V., O’Doherty, K. C., Bartlett, G. (2016). Addressing ethical challenges at the intersection of pharmacogenomics and primary care using deliberative consultations. Pharmacogenomics, 17(16), 1795-1805. doi: 10.2217/pgs-2016-0092

Crann, S. E., Fairley, C., Badulescu, D., Mohn, W. W., & O'Doherty, K. C. (2015). Soils, microbes, and forest health: A qualitative analysis of social and institutional factors affecting genomic technology adoption. Technology in Society, 43, 1-9. doi: 10.1016/j.techsoc.2015.06.001

Cunningham, S., O’Doherty, K. C., Sénécal, K., Secko, D., & Avard, D. (2015). Public concerns regarding the storage and secondary uses of residual newborn bloodspots: an analysis of print media, legal cases, and public engagement activities. Journal of Community Genetics, 6(2), 117-128. doi: 10.1007/s12687-014-0206-0

Culver, K. & O’Doherty, K. C. (Eds.). (2014). Fishing and Farming Iconic Species: Cod and Salmon and Social Issues in Genomic Science. Concord, Ontario: Captus Press.

Cohen, E. & O’Doherty, K. C. (2014). Perceptions of salmon genomics among the Chinese-Canadian and Indo-Canadian community in BC. In K. Culver & K. O’Doherty (Eds.) Fishing and Farming Iconic Species: Cod and Salmon and Social Issues in Genomic Science. Concord, Ontario: Captus Press

O'Doherty K. C. (2014). [Review of the book Telling Genes: The Story of Genetic Counseling in America by A. M. Stern]. Journal of the History of the Behavioral Sciences, 50(1), 115-117.

O'Doherty K. C. (2014). Genetic counseling, overview. In: Teo T. (Ed.) Encyclopedia of Critical Psychology: New York, NY: Springer

O’Doherty, K. C., & Einsiedel, E. (Eds.). (2012). Public Engagement and Emerging Technologies. Vancouver, BC: UBC Press.

O’Doherty, K. C. (2009). Agency and choice in genetic counseling: Acknowledging patients’ concerns. Journal of Genetic Counseling, 18(5). 464-474. doi: 10.1007/s10897-009-9237-9.

O’Doherty, K. C. (2009). Agency in genetic counselling: A framework for evaluating autonomy. In T. Teo, P. Stenner, A. Rutherford, E. Park, & C. Baerveldt (Eds.) Varieties of Theoretical Psychology: International Philosophical and Practical Concerns. Concord, Ontario: Captus Press.


Involvement of Children and Adults in Biomedical Research

O’Doherty, K. C. & Burgess, M. M. (2019). Developing psychologically compelling understanding of the involvement of humans in research. Human Arenas. Advance online publication. doi: 10.1007/s42087-019-00066-w

Christofides, E., Stroud, K., Tullis, D. E., & O’Doherty, K. C. (in press). Improving dissemination of study results: Perspectives of individuals with cystic fibrosis. Research Ethics.

Barned, C., Dobson, J., Stinzi, A., Mack, D., & O’Doherty, K. C. (2018). Children’s perspectives on the benefits and burdens of research participation. AJOB Empirical Bioethics, 9(1), 19-28. doi: 10.1080/23294515.2018.1430709

Christofides, E., Stroud, K., Tullis, D. E., & O’Doherty, K. C. (2017). The meanings of helping: An analysis of cystic fibrosis patients’ reasons for participating in biomedical research. Journal of Empirical Research on Human Research Ethics,12(3) 180–190. doi: 10.1177/1556264617713098 

Christofides, E., Dobson, J., Solomon, M., Waters, V., O'Doherty, K. C. (2016). Heuristic decision-making about research participation in children with cystic fibrosis. Social Science & Medicine, 162, 32-40. doi: 10.1016/j.socscimed.2016.06.017

Dobson, J. A., Christofides, E., Solomon, M., Waters, V., & O'Doherty, K. C. (2015). How do young people with cystic fibrosis conceptualize the distinction between research and treatment? A qualitative interview study. AJOB Empirical Bioethics, 6(4), 1-11. doi: 10.1080/23294515.2014.997898


Vaginal Hygiene Practices

Jenkins, A., Crann, S., Money, D., & O’Doherty, K. C. (2018). “Clean and Fresh”: Understanding Women's Use of Vaginal Hygiene Products. Sex Roles: A Journal of Research, 78, 697–709. doi: 10.1007/s11199-017-0824-1

Crann, S. E., Cunningham, S., Albert, A., Money, D. M., & O’Doherty, K. C. (2018). Vaginal health and hygiene practices and product use in Canada: A national cross-sectional survey. BMC Women's Health, 18, 52. doi: 10.1186/s12905-018-0543-y

Crann, S., Jenkins, A., Money, D., O’Doherty, K. C. (2017). Women’s genital body work: Health, hygiene, and beauty practices in the production of idealized female genitalia. Feminism & Psychology, 27(4), 510–529. doi: 10.1177/0959353517711964

Wood, J., Crann, S., Cunningham, S., Money, D., & O’Doherty, K. C. (2017). A cross-sectional survey of sex toy use, characteristics of sex toy use hygiene behaviours, and vulvovaginal health outcomes in Canada. The Canadian Journal of Human Sexuality, 26(3), 196–204. doi: 10.3138/cjhs.2017-0016


Illness Experience

Chuong, K. H., Haw, J., Stinzi, A., Mack, D., & O’Doherty, K. C. (2019). Dietary strategies and food practices of pediatric patients, and their parents, living with inflammatory bowel disease: A qualitative interview study. International Journal of Qualitative Studies on Health and Well-being, 14(1). doi: 10.1080/17482631.2019.1648945

Haw, J., Cunningham, S., O’Doherty K. C. (2018). Epistemic tensions between people living with asthma and healthcare professionals in clinical encounters. Social Science & Medicine, 208, 34-40. doi: 10.1016/j.socscimed.2018.04.054

Barned, C., Mack, D., Stinzi, A., O’Doherty, K. C. (2016). To tell or not to tell: A qualitative interview study of disclosure decisions among children with inflammatory bowel disease. Social Science & Medicine, 162, 115–123. doi: 10.1016/j.socscimed.2016.06.023


Communication of Risk & Probability

O'Doherty, K. C., Navarro, D. J., & Crabb, S. (2009). A qualitative approach to the study of causal reasoning in natural language: The domain of genes, risks and cancer. Theory & Psychology, 19(4), 475–500. doi: 10.1177/0959354309336321

O’Doherty, K. C. (2007). Implications of conflicting definitions of probability to health risk communication: A case study of familial cancer and genetic counselling. Australian Health Review, 31(1), 24-33. doi: 10.1071/AH070024

O’Doherty, K. C. & Suthers, G. K. (2007). Risky communication: Pitfalls in counseling about risk, and how to avoid them. Journal of Genetic Counseling, 16(4), 409-417. doi: 10.1007/s10897-006-9077-9

O’Doherty, K. C. (2006). Risk communication in genetic counselling: A discursive approach to probability. Theory and Psychology, 16(2), 225-256. doi: 10.1177/0959354306062537

O’Doherty, K. C. (2005). Conceptualising probability: Interpretations do matter. In A. Gulerce, A. Hofmeister, I. Staeuble, G. Saunders, & J. Kaye (Eds.) Contemporary Theorizing in Psychology: Global Perspectives. Concord, Ontario: Captus Press.


Discursive Analyses of Race and Immigration

Litchmore, R. V. H., Safdar, S., O’Doherty, K. C. (2016). Ethnic and racial self-identifications of second-generation Canadians of African and Caribbean heritage: An analysis of discourse. Journal of Black Psychology, 42(3), 259-292. doi: 10.1177/0095798414568454

O'Doherty, K. C. & Augoustinos, M. (2008). Protecting the nation: Nationalist rhetoric on asylum seekers and the Tampa. Journal of Community & Applied Social Psychology, 18(6), 576–592. doi: 10.1002/casp.973

O’Doherty, K. C. & LeCouteur, A. (2007). ‘Asylum Seekers’, ‘Boat People’ & ‘Illegal Immigrants’: Social categorization in the media. Australian Journal of Psychology, 59(1), 1-12. doi: 10.1080/00049530600941685

O’Doherty, K. C. & Augoustinos, M. (2007). Australia and the Tampa: The use of nationalist rhetoric to legitimate military action and the marginalisation of asylum seekers. In D. W. Riggs (Ed.) Taking up the Challenge: Critical Whiteness Studies and Indigenous Sovereignties. Adelaide, Australia: Crawford House


Other Publications

Dobson, J. A., Bronson, K., & O’Doherty, K. C (in press). Fracking in Canadian print news: A socio-technical debate. Science Communication.

Barned, C., & O’Doherty, K. C. (2019). Understanding fatness: Jamaican women’s constructions of health. Fat Studies, 8(1), 25-43. doi: 10.1080/21604851.2019.1532231

O’Doherty, K. C., Smith, C., & McMurtry, C. M. (2017). Vaccine hesitancy: Ethical considerations from multiple perspectives. In P. Bramadat, M. Guay, J. Bettinger, & R. Roy (Eds.) Public Health in the Age of Anxiety: Religious and Cultural Roots of Vaccine Hesitancy in Canada. Toronto, ON: University of Toronto Press. doi: 10.3138/9781487510404-004

O'Doherty K. C. & Winston A. (2014). Variable, overview. In: Teo T. (Ed.) Encyclopedia of Critical Psychology. New York, NY: Springer.

O’Doherty, K. C. (2011). [Review of the book Relational Being: Beyond Self and Community by K. J. Gergen] Journal of Theoretical and Philosophical Psychology, 31(1), 61-64. doi: 10.1037/a0022548